NF2 Neurofibromatosis We are from the Mass/RI area.We can't find someone to take this case,which to us,it's a clear cut case, as to the end results were to our family member.So we keep searching to find someone to help us.Any help or advice is appreciated.
I would say your best bet would be through the hospital. Neurofibromatosis is very rare and very few have ever heard of it. I have it.
What is the issue your having? When I was in the 10th or 11th grade. The doctor who removed tumors from my arm had told my parents he has removed these tumors, but after it was all said and done. The truth was he didn't. My parents were going to take him to court, but we ended up not paying the rest of the medical bill for the surgry and didn't have to go to court or anything.
Now we just stick with going to my doctor in Chicago and if I need any surgry's we have them done there instead of where I live in Michigan.